Experiences of Couples Caring for a Child Born with Cleft Lip and/or Palate: Impact of the Timing of Diagnosis
Author(s) | Zeytinoğlu, Senem | |
Author(s) | Davey, Maureen P. | |
Author(s) | Crerand, Canice | |
Author(s) | Fisher, Kathleen | |
Author(s) | Akyil, Yudum | |
Ordered Author | Senem Zeytinoğlu Maureen P. Davey Canice Crerand Kathleen Fisher Yudum Akyil | |
UD Author | Davey, Maureen P. | en_US |
Date Accessioned | 2016-11-10T16:33:20Z | |
Date Available | 2016-11-10T16:33:20Z | |
Copyright Date | Copyright © 2016 American Association for Marriage and Family Therapy | en_US |
Publication Date | 2016-07-08 | |
Description | Final peer-reviewed manuscript | en_US |
Abstract | Raising a child born with cleft lip and/or palate (CL/P) can be challenging for parents. Few researchers have examined how having a child born with CL/P impacts couples. The purpose of this descriptive qualitative study was to examine how a child’s CL/P diagnosis affects couples’ adjustment and their relationship. We conducted interviews with 17 couples (10 prenatal and 7 postnatal) caring for children born with CL/P. After conducting thematic content analysis, six overarching themes emerged: (1) relationship growth, (2) challenges, (3) roles and responsibilities, (4) sources of support, (5) talking about cleft, and (6) lessons learned. Findings suggest couples should be routinely assessed for psychosocial issues and prevention programs should be tailored to pre-existing stressors and timing of the diagnosis. | en_US |
Department | University of Delaware. School of Nursing. | en_US |
Citation | Zeytinoğlu, S., Davey, M. P., Crerand, C., Fisher, K. and Akyil, Y. (2016). Experiences of couples caring for a child born with cleft lip and/or palate: Impact of the timing of diagnosis. Journal of Marital and Family Therapy, 00, 000–000. doi: 10.1111/jmft.12182 | en_US |
DOI | DOI: 10.1111/jmft.12182 | en_US |
ISSN | 1752-0606 | en_US |
URL | http://udspace.udel.edu/handle/19716/19834 | |
Language | en_US | en_US |
Publisher | Wiley for American Association for Marriage and Family Therapy | en_US |
dc.rights | Final peer-reviewed manuscript is made available in accordance with the University of Delaware Faculty Policy on Open Access and the publisher\'s policy. | en_US |
dc.source | Journal of Marital and Family Therapy | en_US |
dc.source.uri | http://onlinelibrary.wiley.com/journal/10.1111/(ISSN)1752-0606 | en_US |
Title | Experiences of Couples Caring for a Child Born with Cleft Lip and/or Palate: Impact of the Timing of Diagnosis | en_US |
Type | Article | en_US |
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