Experiences of Couples Caring for a Child Born with Cleft Lip and/or Palate: Impact of the Timing of Diagnosis

Author(s)Zeytinoğlu, Senem
Author(s)Davey, Maureen P.
Author(s)Crerand, Canice
Author(s)Fisher, Kathleen
Author(s)Akyil, Yudum
Ordered AuthorSenem Zeytinoğlu Maureen P. Davey Canice Crerand Kathleen Fisher Yudum Akyil
UD AuthorDavey, Maureen P.en_US
Date Accessioned2016-11-10T16:33:20Z
Date Available2016-11-10T16:33:20Z
Copyright DateCopyright © 2016 American Association for Marriage and Family Therapyen_US
Publication Date2016-07-08
DescriptionFinal peer-reviewed manuscripten_US
AbstractRaising a child born with cleft lip and/or palate (CL/P) can be challenging for parents. Few researchers have examined how having a child born with CL/P impacts couples. The purpose of this descriptive qualitative study was to examine how a child’s CL/P diagnosis affects couples’ adjustment and their relationship. We conducted interviews with 17 couples (10 prenatal and 7 postnatal) caring for children born with CL/P. After conducting thematic content analysis, six overarching themes emerged: (1) relationship growth, (2) challenges, (3) roles and responsibilities, (4) sources of support, (5) talking about cleft, and (6) lessons learned. Findings suggest couples should be routinely assessed for psychosocial issues and prevention programs should be tailored to pre-existing stressors and timing of the diagnosis.en_US
DepartmentUniversity of Delaware. School of Nursing.en_US
CitationZeytinoğlu, S., Davey, M. P., Crerand, C., Fisher, K. and Akyil, Y. (2016). Experiences of couples caring for a child born with cleft lip and/or palate: Impact of the timing of diagnosis. Journal of Marital and Family Therapy, 00, 000–000. doi: 10.1111/jmft.12182en_US
DOIDOI: 10.1111/jmft.12182en_US
ISSN1752-0606en_US
URLhttp://udspace.udel.edu/handle/19716/19834
Languageen_USen_US
PublisherWiley for American Association for Marriage and Family Therapyen_US
dc.rightsFinal peer-reviewed manuscript is made available in accordance with the University of Delaware Faculty Policy on Open Access and the publisher\'s policy.en_US
dc.sourceJournal of Marital and Family Therapyen_US
dc.source.urihttp://onlinelibrary.wiley.com/journal/10.1111/(ISSN)1752-0606en_US
TitleExperiences of Couples Caring for a Child Born with Cleft Lip and/or Palate: Impact of the Timing of Diagnosisen_US
TypeArticleen_US
Files
Original bundle
Now showing 1 - 1 of 1
Loading...
Thumbnail Image
Name:
Final revision cleft - JMFT manuscript_1468257373T0167.pdf
Size:
455.57 KB
Format:
Adobe Portable Document Format
Description:
License bundle
Now showing 1 - 1 of 1
No Thumbnail Available
Name:
license.txt
Size:
2.22 KB
Format:
Item-specific license agreed upon to submission
Description: